Twenty-First Chromosome Leads to Enlightenment
Photo (Web Source): Several young people, a few of whom share a quirky 7th or 21st chromosome, gather for a Christmas Party. Within the group can been seen a few like our son who have that quirky 7th that is commonly known as Williams Syndrome (I)
Recent Videos: May 14, 2022. A Quick Look at Williams Syndrome
February 14, 2022. 60 Minutes Australia Discuss Williams Syndrome
A Winning Smile, A Loving Heart (2020 Birthday Video)
Re: Open Letter Penned to Anne Coulter
On October 23, 2012, a young man, John Franklin Stephens, an Olympian, posted a letter to Anne Coulter on the Special Olympics blog. In the letter John chided Anne for her insensitivity by referencing President Barack Obama as a retard. John, a very inquisitive and sensitive man who entered life with a mix-up in his 21st chromosome, inquired of Anne as to why she choose to use the word ‘retard’ to describe President Obama. John’s comments include:
… I thought first of asking whether you meant to describe the President as someone who was bullied as a child by people like you, but rose above it to find a way to succeed in life as many of my fellow Special Olympians have.
Then I wondered if you meant to describe him as someone who has to struggle to be thoughtful about everything he says, as everyone else races from one snarky sound bite too the next.
Finally, I wondered if you meant to degrade him as someone who is likely to receive bad health care, live in low grade housing with very little income, and still manages to see life as a wonderful gift…
… After I saw your tweet, I realized you just wanted to belittle the President by linking him to people like me. You assumed that people would understand and accept that being linked to someone like me is an insult and you assumed you could get away with it and still appear on TV. Link here for Letter
John’s words struck a chord with my wife and me (reference footnote 2) and with the general public. His remarks were shared widely across the internet and in news reports worldwide. When kids were called names in my school years, they would often resort to the singsong mantra: “Sticks and stones may break my bones, but names will never hurt me.” Perhaps! These taunts were often passed singly from person to person or within small groups at school or on the street in an earlier age. The coverage, while hurtful, was relatively narrow.
Today, broadcast media and the internet allow such taunts to go viral. Within short order, a single tweet was shared among thousands, perhaps millions, as in the case of the post by Anne Coulter. We have all read stories of the tragic results, and Anne is not the only person responsible for such thoughtless, mean spirited words and actions.
Why are words of a taunt used to describe an individual or groups of people? For many, racism and prejudice play a significant role as individuals and groups seek to demonize those they do not understand or who they might hate for a thousand different reasons. In recent years, the Muslim community has taken the brunt of such prejudice, while at an earlier age, others (e.g. Irish, Italian, Chinese, Japanese, Eastern European, etc.) were vilified. For others who carry on this practice, they may use it to assuage feelings of inadequacy or inferiority they sense within themselves. For ordinary folks like Anne, the taunts are used to gain notoriety and to aid in holding a job that provides an excellent salary and notorious celebrity status.
Take a moment and think about words that have been invoked over the past 100 years to belittle or degrade a defined cultural group or those connected by a common interest or orientation (e.g. race, religion, sexual, disability, etc.): Nip, Kike, Pongo, Nigger, Kraut, Wop, Bow and Arrow, Nestor, Wagon Burner, Chug, Frog, Spick, Bohunk, Wigger or Wegro (for Irish), Chink, Slant Eye, Pollack, DP (Dumb Pollack), Rag Head, Towel Head, Waki Paki, Dogan, Infidel, Bible Thumper, Carpet Kisser, Christ Killer, Jew, Jesus Freak, Faggot, Dyke, Queer, Pansy, Queen, Retard along with dozens upon dozens of others that also include the most despicable pictures and jokes. Have you ever received one of those vile emails about another culture or about members of our society whose lifestyle is different? For instance, did you hear the one about the Paki (or lesbian or queer)…?
Hateful and hurtful, clearly, yes, but does not use of these words or published material speak more to the character of taunter than the taunted? Anne’s use of the word retard speaks volumes about the small world Anne and her listeners occupy and very little about those she (and they) seek to disparage.
As for Anne Coulter, Rush Limbaugh, Glenn Beck and countless others on far-right or left who continue to drawn people in with to their thoughtless, hate-filled, and politically motivated comments to gather viewers, listeners, readers and voters, there is little can be done other than follow the lead of young John Franklin Stephens whose 21st chromosome led him along a path of enlightenment. Is it not wonderful that a young man with some limitations can make a difference on the world stage?
Harold McNeill
Victoria, BC
November, 2012
A Winning Smile, A Loving Heart (2020 Birthday Video)
The Pixie Children
Williams Syndrome: “Is caused by a deletion of about 26 genes from the long arm of chromosome 7. The syndrome was first identified in 1961 by New Zealander J.C.P. Williams and has an estimated prevalence of 1 in 7,500 to 1 in 20,000 births”, a relatively rare occurrence at best. (Wikipedia)
I have the distinct privilege of being the step-father to a young man whose quirky 7th chromosome gifted him with a charming and extraordinarily kind character. I would venture to say the young man, now forty, and his group of brothers and sisters around the world, do not have a mean bone in their bodies. These children and adults are always ready, willing and able to lend a hand to someone (anyone) in need and while they may chide others for being ‘mean’, I have never seen one of them judge others harshly because of mental incapacity, religion, ethnic origin or socio-economic status.
On a literary note, it seems likely those gifted with this extraordinary 7th chromosome, have, in centuries past, lead many to believe they possess a kind of magical or mystical power.
Over the decades these children have come to be known widely as the ‘pixie’ kids and it seems likely their stature and facial features may have lead to a folklore filled with elves, fairies and other forms of the ‘good people’ or ‘wee folk’ as is so often present in English literature. Coincidently, it was in an article by a British Physician that my wife and I first learned about the nature of the syndrome in our own son.
Drawing: Poor little birdie teased by Victorian era illustrator Richard Doyle who depicted an elf with the facial features associated with Williams Syndrome.
Since having become this young man’s step-father and having been drawn more deeply into a world of individuals who face life challenges that most of us will never experience and of which few of us have any real understanding, I have found that community to be filled with individuals who are loving, caring and helping, without reservation and without condition.
An intriguing question, and one that as far as I know has yet to been answered, is why individuals with quirky chromosomes at locations such as ‘7’ (as in Williams Syndrome) and ‘21’ (as in Downs) are gifted with a full range of similar personality traits of which most of the mainstream population is not. Well, perhaps the mainstream is likewise gifted, but simply choose to park those traits on a back shelf as being ‘inconsistent’ with some of their practices.
Think for a moment of how differently our world be if those personality traits were brought to the forefront and shared on a regular basis among the majority of mankind?
Harold
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Grayson Chronicles: Part IV
Photo: Off to the Rodeo
Above is one of the many photos that Grandpa snapped as we travelled from the
Battleford Campground, through north-central Saskatchewan and finally south-west to Calgary, Alberta.
In this photo, taken at the Medicine Hat Rodeo (Chapter 43), the cowboy looking down was perhaps thinking he should rope his partner instead of the steer. The flag (held by the other cowboy to the far right)
came down at the very moment the first cowboy had completed hog tying his partner. I’m not
sure whey the decided to change from one event to another, but, I suspect, these two will have
to work out some of the kinks in their roping routine before they try again. I bet that steer had
a good laugh as he stormed by the fallen and hog tied rider.
This Book is Only Available On Amazon
Photo (2012): Grayson gazes out over the North Thompson River and the
mountains beyond: “Grandpa, we need to go see what’s beyond those mountains.”
(Cover Photo Arrangement by Alysha McNeill)
Link to KDP Book (make sure you order on the January 4, 2025 edition)
Dear Reader,
The following chronicles were written during the magical summer of 2012 when five-year old Grayson Edward Walker, along with his Grandpa, Harold David McNeill, his brother, Jay Wesley McNeill and a close family friend, Bjorn Oscar Simonsen (Uncle Bjorn) completed an exploratory expedition through British Columbia, Alberta and Saskatchewan. While the trip through British Columbia was relatively peaceful, once they hit the Alberta border, they entered a new and perilous world. After visiting family and friends across the Province they hit out for Saskatchewan to visit the places where Grandpa was born and where Uncle Bjorn and his family first landed when they emmigrated to Canada from Norway in the early 1950s. In this Province they would again be faced with many hurdles as they visited the many farms and historic sites that were part of the family history.
The 200 page book is filled with dozes of full colour photographs of family, friends, events and special places in the lives of the intrepid explorers. Dozens of Chapters are written from the perspective of Grayson.
Cheers,
Harold, Grayson, Jay, and Bjorn
Contact Harold at: lowerislandsoccer@shaw.ca
Introduction
Part IV of the Grayson Chronicles is now complete. In this part we will continue our trip through Saskatchewan and back into Alberta. Along the way we shall attempt to rescue a down and out relative from the clutches of the Saskatchewan Penitentiary, travel to Birch Hills to visit the farm where Bjorn’s father worked after emigrating to Canada, then, while on the highway back to our way campground, pass a woman just as she drove her car into her boyfriend the fled the scene.
After getting into all this trouble in PA, we head south to again follow the trail of Louis Riel to Batoche, his famous last stand. From there we head to Rosthern where we will buy Taber Corn that isn’t from Taber and BC Cherries that are not from BC. Following this we continue south to a beautiful section of the South Saskatchewan River known as Diefenbaker Lake were we set up camp for a couple of days of R&R before heading onward to the Cyprus Hills Provincial Park, an immense section of land that straddles Saskatchewan, Alberta and the State of Montana.
After taking in a block buster rodeo in Medicine Hat, the final stop, after visiting a number of Stonehenge type monuments in the fields east of Calgary, we will drop in for a wonderful visit with a number of family members who call Calgary home. I wonder if they know about these monuments?
We hope you will enjoy the 14 Chapters of this section.
Links to Calgary Family Photos
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14 Night Hawaiian Land/Cruise Dream Holiday
An exotic 14 night Hawaiian dream vacation May 3-17th 2013. Experience the Hawaiian Islands as never before aboard the majestic Radiance of the Sea cruising from island to island, and across the Pacific to the beautiful port of Vancouver. The perfect gift for someone special. (Don’t forget Mother’s day is May 12!)
Perhaps a second honeymoon, anniversary or transition to a well earned retirement is the order of the day?
Arriving from Vancouver by air, you will spend three unbelievable nights enraptured by the inate beauty of Hawaii. Stroll along the famous Waikiki Beach, explore the nightlife of Honolulu, immerse yourself in the history of Pearl Harbour, and explore the many more attractions of Oahu before embarking upon an unforgettable cruise of the Hawaiian Islands and home aboard the Radiance of the Sea.
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Grayson Chronicles: Part III
Photo: Our first stop in Saskatchewan is at the farm of two of Grandpa’s cousins, Leonard and Helen Pylypow in Glaslyn. Helen is one of the daughers of Denny and Hazel Dewan (McNeill), (one of grandpa’s dad’s sisters).
Here you see me sitting atop one of the bales of hay in Uncle Leonard’s field. We were only there a few days but we did so many things I have no idea where to begin. Well, actually, I do know, I just need a little bit of Grandpa’s help to get me going. My story involves ‘love’, and love, as I once heard someone at playschool explain, is unfathomable.
This Book is Only Available On Amazon
Photo (2012): Grayson gazes out over the North Thompson River and the
mountains beyond: “Grandpa, we need to go see what’s beyond those mountains.”
(Cover Photo Arrangement by Alysha McNeill)
Link to KDP Book (make sure you order on the January 4, 2025 edition)
Dear Reader,
The following chronicles were written during the magical summer of 2012 when five-year old Grayson Edward Walker, along with his Grandpa, Harold David McNeill, his brother, Jay Wesley McNeill and a close family friend, Bjorn Oscar Simonsen (Uncle Bjorn) completed an exploratory expedition through British Columbia, Alberta and Saskatchewan. While the trip through British Columbia was relatively peaceful, once they hit the Alberta border, they entered a new and perilous world. After visiting family and friends across the Province they hit out for Saskatchewan to visit the places where Grandpa was born and where Uncle Bjorn and his family first landed when they emmigrated to Canada from Norway in the early 1950s. In this Province they would again be faced with many hurdles as they visited the many farms and historic sites that were part of the family history.
The 200 page book is filled with dozes of full colour photographs of family, friends, events and special places in the lives of the intrepid explorers. Dozens of Chapters are written from the perspective of Grayson.
Cheers,
Harold, Grayson, Jay, and Bjorn
Contact Harold at: lowerislandsoccer@shaw.ca
Snippet:
20. A Young Man Falls in Love (by Grandpa)
Nothing can warm a grandfather’s heart more than seeing his five year old, well, almost six, grandchild fall in love before your very eyes. About mid-way through our prairie adventure, we were hunkered down on a cousin’s farm in Northwestern Saskatchewan in the small community of Glaslyn. After a day of baling hay, target shooting and feeding the buffalo on the farm of another of another cousin, we were just getting ready for dinner and it was at that moment — love struck.
Link here for pictures: Battleford Campground
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Mount Albert Edward: An Adventure
Cover Photo (from Web). No this is not Mount Albert Edward, this is the Golden Hind, viewed from Morrison Spire (photo by Dave Ingram). The Golden Hind, at 2200 meters (7217 feet), is the highest peak on Vancouver Island. This photo is placed here as it will serve as a challenge to Dianne and Michel who will surely stand on that peak in the not to distant future. Perhaps, just perhaps, I shall stand with them. The mountain we set about to challenge on this trip is the somewhat lessor (although not by much) Mount Albert Edward. a respectable 2100 meters (6900 feet). The twists and turns of the trip are documented in this short story of our three days in Strathcona Park.
Link Here for the Mount Colonel Foster Adventure
I am most fortunate to live within an extended family whose quest for adventure has motivated me in every decade of my life. In the recent decade, since joining Facebook, never a week goes by that the details of new adventure by some family member or friend is posted. It is the posts about real life experiences and adventures that serve as constant motivation too challenge life at every turn, not the memes and platitudes that seem to come with such frequency.
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Quebec Election Results
Cartoon: When Renes Levesque became the PQ Quebec Premier in 1976, the rest of Canada became apoplectic. Not only was Levesque very popular across Quebec, but, over time, Canadians in other Provinces came to admire the chain smoking, outspoken work-a-holic. Levesque initiated the first major charge for Quebec independence which was then carried forth by the PQ party, a charge that nearly succeded in 1995.
Following loss of the referendum by vote of 50.6 to 49.4 (less than 53,500 votes), then PQ Premier Jacques Parizeau, blamed the loss on money and the ethnic vote. Following the loss, he quit in a fit of anger while giving a speech that was nothing short of racist. Since that time the PQ party has carried the separtist banner in which open racism bubbles just beneath the surface.
September 4, 2012 Vive le Canada!
Interesting election results in Quebec, although that tragic shooting certainly threw a pall over the emerging results. With 68.1% of the population voting against them, and relegated to a rather weak minority position, the PQ certainly have their work cut out for them.
From my perspective, if the PQ remain intent upon creating ‘winning conditions’ in any vote for a separate state, they must attend to the following:
Cartoon: Quebec Separtists continue to fight a battle that was lost nearly two and one-half centuries ago. It is time to move on.
Federal Handouts: Over the next eight years (assuming they stay in power), reduce their reliance upon Federal handouts by ONE BILLION per year. A tough financial hit, but without first weening themselves from those generous federal handouts, theyh would be reduced to third world status.
Balance the books. At present Quebec is almost on par with Italy in terms of indetedness, yet they are a very rich Province in terms of natural and human resources. The PQ will need to begin reducing the funding for many programs (e.g. child care) and may even need to increase University fees above that which the Liberals imposed.
Increase immigration. Quebec, with an extremely low birth rate, must bring in many more immigrant workers willing to take jobs that no ‘self respecting’ Quebecer would consider. This is a problem that is shared with the rest of Canada.
Drop talks of linguistic crackdowns. With the absolute need for more foreign workers, few of those new workers will be French speaking. If those workers do speak a second language, it will very likely be English. To seek both linguistic purity and independence is an oxymoron unless the PQ intend on forming a dictatorship in which the majority of Quebecers would have no voice (except French).
Secular Province: If there is an intent to become a fully secular Province, do so, but do not give Christianity a free pass. With the demise of the power of the Catholic Church, Quebec has already moved from being the most Christian Province in Canada to the most secular. Trying to legislate back something that has been lost in the sands of time is a ‘lost cause’. Prohibiting only non-christians from displaying religious symbols is pure racism. It is either all or nothing.
With the economic drivers of Canada having moved westward over the past two decades, Quebec will find that fewer and fewer Westerners and, for that matter, other Canadians who are much worried about Quebec pulling the pin. The advantages to Quebec in staying are far to numerous. The was reflected by the percentage vote in the election.
The PQ, holding barely 30%, need to spent all their time cleaning house before anything close to “winning conditions” might be created. Of course, in trying to do that they would alienate all Quebecers. I don’t think the PQ has the fortitude to follow that path, so the only path they can follow is by creating as much dissension as possible. They have learned that lesson well from the Republicans, Tea Party and other fringe groups within the United States.
Take a few moments and read the PQ Platform for Quebec (remember they carry this platform while, at the same time, reap the benefits of being a part of Canada):
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Achieve sovereignty for Quebec following a public consultation by referendum when deemed appropriate.
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Use any means at Quebec’s disposal to fully assume all powers for the development of Quebecers, particularly in the areas of education, culture, social programs, health, justice, the environment and immigration.
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Develop a new Quebec secularism charter.
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Establish Quebec citizenship.
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Create Espaces Québec to spread the expertise of Quebecers to countries where we have economic, political, scientific or cultural interests.
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Strengthen teaching and research in history at all levels, from elementary schools to university, with a focus on the national history of Quebec and its institutions.
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Strengthen Quebec’s presence within the Francophonie.
Cartoon: There seems little doubt the PQ will continue to whine and cry about how unfairly Quebecers are being treated in Canada and will bait Ottawa at every opportunity. Creating as much dissension as possible rather than improving conditions for the majority of Quebecers many be the PQ’s only chance for success.
In that quest, I think (and hope) the PQ will fail as the majority of Quebecers have come to realize their future is inextricably linked to a united and prosperous Canada. The new battle cry in Quebec could very well become:
“Vive le Quebec! Vive le Canada! Vive le Canada libre! Vive le Canadian Dominion! Et vive la Canada!”
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Hiking Mount Colonel Foster
Hiking Travelogue by Dianne McNeill and Michel Payeur
Link Here for the Mount Albert Edward Adventure
This weekend we did a backcountry hike we’ve been wanting to do since we first moved to the island…an overnighter into Mt. Colonel Foster. We loaded 30-35 lb gear/food into our backpacks and off to the mountains we headed.
I wondered how I was going to cope with the pack…but my strength, agility and endurance were well up to the task. And what a wonder-full weekend it was! Glacier fed waterfalls and lakes, beaver engineered ponds, SNOW!, forest scented by giant cedars, jagged mountain peaks, the green only seen in sun thru the rainforest canopy, tumbling/rushing rivers.
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Intouchables: Movie Review
Photo: This scene in the movie reminded Lynn and I very much of an adventure we
we experienced in the skies over Interlauken in Switzerland. The visuals were so similar it was errie.
Lynn could totally sympathize with the younger man (LINK HERE)
Except for the Bourne Legacy last week, we seem to have been doing very well with our movie selections. The Best Marigold Hotel and Hope Springs, our other most recent, garnered four thumbs up. Last night after spending a few minutes chatting with the young lady in the popcorn stand at the Odeon (Victoria) and telling her about our impressions of the three movies, she stated that seemed to be the general customer response.
The choice of the Intouchables, (French, 2012) was somewhat different, yet garnered four thumbs up as have our other selections in sub-titled movies such as The Girl with the Dragon Tattoo Trilogy (Swedish) and Bon Cop Bad Cop (French, 2006). Those movies, as with the Intouchables, posed no barriers in understanding. For that matter, I think one pays closer attention to the characters when not having the voice track.
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